On Capitol Hill for MEBO Research

On Thursday, June 23, 2011, Glenna Gonzalez, Director of Public Relations for MEBO Research, Inc., participated in the sixth annual Genetics Day on the Hill, sponsored by Genetic Alliance, the world’s leading nonprofit health advocacy group. In addition to coaching clients both internationally and nationally and speaking, Glenna advocates for MEBO in various settings, such as the event on Capitol Hill, which included a cross-section of the genetics community, including health professionals, researchers, and families.

Glenna had the opportunity to discuss with U.S. Congressional Staffers the issues that affect TMAU and Bromhidrosis sufferers.

Glenna, along with others, presented a collective voice to Congressional Staffers in an effort to support policy issue changes that impact genetics and health issues. In addition to discussing these issues, Glenna had the opportunity to discuss with U.S. Congressional Staffers the issues that affect TMAU and Bromhidrosis sufferers. She discussed the need for more research, the difficulties with maintaining gainful employment, and the emotional toll that these conditions have on the sufferers. Glenna discussed the work that MEBO Research performs as an advocacy group on behalf of those who suffer with metabolic body odor.

She discussed the need for more research, the difficulties with maintaining gainful employment, and the emotional toll that these conditions have on the sufferers.

The Congressional Staffers that Glenna met with were those of two Senators (VA), Jim Webb - (D) and Mark R. Warner - (D), and three House of Representatives, Republican Majority Leader Eric Cantor of VA, Gerald E. Connoly of VA - (D), and Representative James Moran - (D). She received a warm reception from each group of Congressional Staffers. In addition to discussing MEBO Research, she also joined the other members of her team in discussing issues selected by the Genetic Alliance. Topics chosen by the Genetic Alliance to be discussed with the Congressional Staffers included the following issues:

1. The Title V Block Grant which is the Maternal and Child Health Program
2. The National Center for Accelerating Translational Sciences, a new Center at NIH
3. The protection of health and well-being through the CDC (Center for Disease Control) programs for birth defects, disabilities and public health.

We are most grateful to Glenna for representing MEBO Research on Capitol Hill and establishing relations with, and illustrating our plight to United States Congressional Staffers as well as other members of the Genetic Alliance. We are encouraged that she has paved the way for MEBO to now have the opportunity to work with the offices of the two Senators of the State of Virginia, Mark Warner and Jim Webb, and four House of Representatives, as we continue to pursue and initiate research, as well as in our efforts to raise awareness of the socioeconomic consequences of living with body odor and bromhidrosis. We are hopeful that this process paves the way for MEBO to more effectively carry out its Public Charity Mission to change the lives of sufferers as well as to change society's perception of what it means to live in a body that has a difficult to control malodor condition.

Genetic Alliance is the world’s leading nonprofit health advocacy organization. The organization promotes an environment of openness centered on the health of individuals, families, and communities. It was a true pleasure for Glenna to participate in this event as a representative for MEBO Research. Glenna looks forward to attending next year. Genetic Alliance has an extensive Resource Repository on their website where we can continue to educate ourselves about genetic issues and genetic testing.

PLEASE SIGN THE PETITION TO,

• raise awareness of systemic body odor conditions in the medical community
• governments to increase direct federal funding
• make scientific research of various types of body odor diseases a high-priority; including but not limited to, Trimethylamimuria (TMAU)
• efforts so that effective treatments and cures can be found.

PLEASE ASK YOUR FAMILY, FRIENDS, AND SUPPORTERS TO SIGN.
Anyone can select to either display or not display
his or her signature publicly on the petition.
PLEASE INDICATE YOUR COUNTRY OF RESIDENCE TO REPRESENT
A UNITED INTERNATIONAL COMMUNITY.

Thank you Glenna and all the signatories for your participation in finding a solution,

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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