MEBO Database: A message from Karen

MEBO's Public Relations Director in the UK, Karen James, is working on expanding the MEBO Database of sufferers who may be interested in participating in research and testing. This database consists of sufferers who have already done their TMAU test, or any other diagnostic test ordered by their health care provider in pursuit of better understanding and management of odor condition.

At this time, we ask those who would like to be included in this database to be willing to share those results only when and if it is necessary for a particular study. As announced in this blog, there are currently two active research projects in place right now, so anyone wishing to share their results with MEBO to support this research could do so, as Karen mentions below.

Your privacy is of the utmost importance for MEBO Research, 

and all measures will be taken to protect it.

Below is a message from Karen:

MEBO Research have a database of people who tested for TMAU in any lab in the world and participated in the three MEBO Clinical Trials via their organisation. This list could be very useful for when scientists are interested in recruiting research participants at short notice. We are hoping that such an opportunity could arise very soon, and we want to be ready for it by having an extended list of potential volunteers with an odour problem. If you would like to be added to the MEBO database, which holds records of odour sufferers from around the world, then please send your details to maria.delatorre@meboresearch.org or karen.james@meboresearch.org. If you don't have a positive diagnosis, you can still send in your details and they can be recorded for future use.

Information needed is:
1. NAME as it appears on the test results forms,
2. Date of birth for identification purposes (helpful when names are common)
3. Address, including country, phone number, and email address. The address and phone number would facilitate the process of shipping kits if necessary.
4. Test type, i.e., TMAU test with NHS, MEBO Volatile Organic Compounds in Alveolar Breath Study, Biolab Study, tests noting hormonal imbalance or gut disorders, etc. (as many different types of tests they think may be significant to consider for an odor condition including, but not limited to TMAU).
5. TEST RESULTS

optional information:
Odor type and whether constant or intermittent
Triggers ( hormonal changes, such as menstruation, thyroid problems, trigger foods)
If positive for TMAU, did the TMAU diet work?
Do people experience allergic reactions to you?

Please be a proactive part of the MEBO Mission. Be part of the solution to the suffering those afflicted with these conditions are going through!

Thanking you all in advance and thanking Karen or her most influential work,

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization

"The Tourmaline" By Karen E. James

The Tourmaline
By Karen E. James

The following are the MEBO affiliate links:

Amazon USA :
http://www.amazon.com/dp/B00MI3C4II/?tag=mri0a-20

Amazon UK :
http://www.amazon.co.uk/dp/B00MI3C4II/?tag=mere0d-21


Our very talented Public Relations Director and Raising Awareness Activist, Karen James, has written The Tourmaline, a "daring fantasy novel for young adults which, with humorous touches, juxtaposes urban life with a fantastical world where paranormal powers are used to both combat and perpetuate social inequality."

Let us show Karen our support and appreciation by purchasing her extremely reasonably priced book, only $1.99/USD and £1.22 includes VAT* & free wireless delivery.

We are very proud of Karen's work, both artistic and her MEBO Raising Awareness Campaign. Her mastery of the English language has been a powerful instrument with which she promotes a deeper understand into the essence of the plight of human rights. We thank Karen for her resolve to clearly bring to light the effects of social injustices, for her plight to change them, and for her very effectual advocacy to the MEBO cause. Let us show Karen our support and appreciation by purchasing her very reasonably priced book, only $1.99/USD and £1.22 includes VAT* and free wireless delivery.

About Karen

In addition to being a strong influential leader in the MEBO community, Karen is currently a school teacher in inner city London. She has a Dance Theatre degree from Laban and a M.A. in performing arts. She has also worked in the field of developing the arts within the community and believes that the arts (including writing for pleasure!) can help young people to develop. See Karen's biography and interview in Smashwords.

About "The Tourmaline"

Volatile but talented, London teenager, Aaron, distrusts most people apart from his incarcerated cousin. When he attacks a fellow pupil to defend his birth mother’s honour, his head teacher gives him a fixed-term exclusion, and his foster parents send him to a residential camp for mild delinquents close to mystical Stonehenge. Once there, inexplicably strange events start to occur...

Keywords: social issues, ecology spirituality, portals to other worlds, fantasy series book 1, urban teenage books, segregationism, resistance fighters, prejudice and racism, London 2014, inequality and injustice.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
.

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EMAIL PROTEST CAMPAIGN TODAY

<div style="text-align: center;">
<span class="Apple-style-span" style="color: #990000;"><span style="font-size: 160%; font-weight: bold;">TODAY IS THE DAY OF OUR
EMAIL PROTEST CAMPAIGN</span></span></div>

<a href="http://www.meboblog.com/search/label/Raising%20Awareness%20Campaign;" target="blank"><img alt="halitosis research" border="0" id="BLOGGER_PHOTO_ID_5591589693793567890" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnB7ljQFDXpQhYBLJ4UbeHir96-BHmOfjfHACULqkLc0yLxfwDuL2gnawHP_LXep6ZWWXH9XTEZvuMqfgxBUqzq7U5pS7CYRufjnrPhL4tRmUbI6jyw9UGNXvNbS56YxOZlmICsi8cPy53/s320/MEBO-LOGO-FIN1%2528smallest%2529.jpg" style="cursor: pointer; float: left; height: 125px; margin: 0 10px 10px 0; width: 103px;" /></a>
<span style="font-size: 180%; font-weight: bold;">P</span><span style="font-size: 110%; font-weight: bold;">lease copy and paste the following and email it to the links below. You are invited to modify, add, or omit whatever you like, or you make just copy and paste.  Please send an email to each link separately, in order to avoid going on the receiver's Spam folder.</span>

<blockquote>

I was extremely disappointed to learn that the grant application for research into the intestinal bacteria of TMAU (Trimethylaminuria) patients and patients with foul-odour-producing metabolic disorders was turned down by the Medical Research Council. This research could have led to the identification of the specific types of bacteria present in the guts of odour sufferers and to the possibility of using fecal bacteriotheraphy/human probiotic infusion as a treatment therapy.

TMAU and other foul-odour-producing disorders are incredibly distressing conditions and, for many, there are no truly effective treatments available. The number of sufferers is ever-increasing and the number of children being diagnosed is also increasing. I would like to urge you to reconsider this erroneous decision and to allow the specialists to research into potential cures and treatments for the condition of Trimethylaminuria as a matter of urgency.

Former campaigns had greater effect when several e-mails and letters were received simultaneously. Our community would be very grateful if you could support us in this venture,


With kindest regards,
[YOUR NAME]</blockquote>

<span style="color: blue;"><span style="font-size: 110%;">
linda.willmott@headoffice.mrc.ac.uk <mailto:linda .willmott="" headoffice.mrc.ac.uk="">
corporate@headoffice.mrc.ac.uk <mailto:corporate headoffice.mrc.ac.uk="">
felicia.rodriguez@headoffice.mrc.ac.uk <mailto:felicia .rodriguez="" headoffice.mrc.ac.uk="">
GPSD@headoffice.mrc.ac.uk <mailto:gpsd headoffice.mrc.ac.uk="">

GrantsPostAward@ssc.rcuk.ac.uk <mailto:grantspostaward ssc.rcuk.ac.uk="">
grants@headoffice.mrc.ac.uk <mailto:grants headoffice.mrc.ac.uk="">
GrantsMRC@ssc.rcuk.ac.uk <mailto:grantsmrc ssc.rcuk.ac.uk="">
Claire.Wyllie@headoffice.mrc.ac.uk <mailto:claire .wyllie="" headoffice.mrc.ac.uk="">
Rebecca.Hodges@headoffice.mrc.ac.uk <mailto:rebecca .hodges="" headoffice.mrc.ac.uk="">
amt@headoffice.mrc.ac.uk <mailto:amt headoffice.mrc.ac.uk=""></mailto:amt></mailto:rebecca></mailto:claire></mailto:grantsmrc></mailto:grants></mailto:grantspostaward></mailto:gpsd></mailto:felicia></mailto:corporate></mailto:linda></span></span>
<hr />
<div style="text-align: center;">
<span class="Apple-style-span" style="color: grey;"><span style="font-size: 160%; font-weight: bold;">For more information on the Raising Awareness Campaign,</span> <a href="http://www.meboblog.com/search/label/Raising%20Awareness%20Campaign" target="blank"><span style="font-size: 160%; font-weight: bold;">see posts.</span></a></span></div>
<hr />

<div style="text-align: center;">
<span class="Apple-style-span" style="color: #990000;"><span style="font-size: 125%; font-weight: bold;">THANKS TO ALL WHO PARTICIPATE
from around the world!</span></span></div>

<b style="font-size: 19px;"><span style="color: #990000;">María</span></b>

<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnB7ljQFDXpQhYBLJ4UbeHir96-BHmOfjfHACULqkLc0yLxfwDuL2gnawHP_LXep6ZWWXH9XTEZvuMqfgxBUqzq7U5pS7CYRufjnrPhL4tRmUbI6jyw9UGNXvNbS56YxOZlmICsi8cPy53/s1600/MEBO-LOGO-FIN1%2528smallest%2529.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5591589693793567890" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnB7ljQFDXpQhYBLJ4UbeHir96-BHmOfjfHACULqkLc0yLxfwDuL2gnawHP_LXep6ZWWXH9XTEZvuMqfgxBUqzq7U5pS7CYRufjnrPhL4tRmUbI6jyw9UGNXvNbS56YxOZlmICsi8cPy53/s320/MEBO-LOGO-FIN1%2528smallest%2529.jpg" style="cursor: pointer; float: left; height: 63px; margin: 0px 10px 10px 0px; width: 53px;" /></a><span style="font-weight: bold;"><span style="font-size: 16px;">María de la Torre</span></span>
<span style="font-weight: bold;"><span style="font-size: 16px;">Founder and Executive Director</span></span>
<span style="font-weight: bold;"><a href="http://meboresearch.org/aboutmebo.html" target="new"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5660762123933721122" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4JKTm2OpTMQn5-zJZN62LJyTfg6wH0K-XlAEB1npUfYqhRNaH6sD0cg0zUDGvz_pr4EcZvkawFMvDo5exTNIr8ZPX_OGqZHcd9y20_7XPZj8caifK5Mt3Ck9S8gRA_doPpno59IazIB3e/s200/mebo-type3+for+signature+box.jpg" style="cursor: pointer; height: 15px; width: 188px;" /></a></span>
<a href="http://olorcorporalyhalitosis.blogspot.com/search/label/MEBO%20Research" target="blank"></a><a href="http://meboresearch.org/" target="blank"><b><span style="font-family: &quot;courier new&quot; , monospace; font-size: 23px;"><span class="Apple-style-span">A Public Charity</span></span></b></a>
<a href="http://meboresearch.org/" target="blank"><span class="Apple-style-span" style="color: blue;"><span style="font-weight: bold;">www.meboresearch.org</span></span></a>
<a href="http://brasil.meboresearch.org/" target="new"><b class="Apple-style-span" style="color: blue;">www.brasil.meboresearch.org</b></a>
<b class="Apple-style-span" style="color: blue;">maria.delatorre@meboresearch.org</b>
<a href="http://www.meboblog.com/" target="blank"><b class="Apple-style-span" style="color: blue;">MEBO's Blog (English)</b></a>
<a href="http://olorcorporalyhalitosis.blogspot.com/"><b class="Apple-style-span" style="color: blue;">El Blog de MEBO (español)</b></a>
<a href="http://brasil.meboresearch.org/blog/" target="new"><b class="Apple-style-span" style="color: blue;">MEBO Brasil - Blog (Portuguese)</b></a>
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