Please e-mail the contacts below with a brief account of your experiences (frustrations at looking for cures etc)
Karen (username malory) has written a post in MEBO's Forum (quoted below) asking us to join her in this venture this month of November. Let us show Karen the same support we gave her with her campaign in March. It was most successful with questions for research posted by the medical authorities in the UK Library of NHS Evidence website of the National Institute for Health and Clinical Excellence (NICE), UK Database of Uncertainties about the Effects of Treatments (UK DUETs).Karen James tells us:
We know that many sufferers of systemic odour conditions have bloodbourne halitosis and/or TMAU. We need to keep raising awareness among others. It would be a good idea to target dental organisations to raise awareness of these conditions so that people can be directed to the support networks they need and not waste time and money going to ‘specialists’ who claim they can cure halitosis.
Please e-mail the contacts below with a brief account of your experiences (frustrations at looking for cures etc) and perhaps paste in the MEBO Research international petition link also so that the extent of the problem can be appreciated by the recipient.
It would be great to make this an international effort and I would happily e-mail/contact any contacts in the US, Australia or anywhere else which others may provide.
enquiries@bda.org (British Dental Association)
allan.reid@bda.org
dentalbranch@dhsspsni.gov.uk
wag-en@mailuk.custhelp.com
fgdp@rcseng.ac.uk (Faculty of General Dental Practice)
editor@badn.org.uk (British Association of Dental Nurses)
online form to be submitted at http://www.General Dental Council
online form to be submitted at http://www.British Dental Health Foundation
online form to be submitted at http://www.NHS Choices
online form to be submitted at http://www.British Association of Dental Therapists
The link below is a petition created by the registered charity MEBO Research which can be signed online to help raise awareness of the condition internationally.
http://www.meboresearch.org/petition.html
If you are uncertain about what to write and would like to discuss it before submitting your testimonial, please do so in the thread Karen started in MEBO's Forum, or send Karen or me a rough draft for us to look at first, please feel free to email it to us, and we'll get back to you.
THANK YOU FOR YOUR UNWAVERING SUPPORT!
WE KNOW WE CAN COUNT ON YOU,
OUR WHOLE INTERNATIONAL COMMUNITY
DEPENDS ON EACH ONE TO WRITE!
We don't have to be UK citizens to write our testimonials,
All are welcome and each one will carry a very important message.
WE KNOW WE CAN COUNT ON YOU,
OUR WHOLE INTERNATIONAL COMMUNITY
DEPENDS ON EACH ONE TO WRITE!
We don't have to be UK citizens to write our testimonials,
All are welcome and each one will carry a very important message.
María de la Torre
Founder and Executive Director
A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)
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