Search This Blog

Search with Labels

Showing posts with label Community Outreach. Show all posts
Showing posts with label Community Outreach. Show all posts

Tuesday, February 23, 2016

World Rare Disease Day: Feb 29, 2016

2016 ANNUAL RARE DISEASE DAY
be a part of the experience

All are welcomed to get involved in this year's World Rare Disease Day on Monday, February 29, 2016! Join the movement! Advocate for the over 350 million with a RARE disease today! Click here to see how to get involved.



World Rare Disease Day is an annual observance to raise awareness for rare disease and improve access to treatments and medical representation for individuals with rare disease and their families. Created by European organization EURORDIS in 2008, this day is celebrated on the last day of February each year. The 9th annual World Rare Disease Day will be held on Monday, February 29, 2016. On this day, various activities take place globally.

Last year, volunteers from our community participated in this annual event by telling their story in the 'Share Your Story Through Social Media' part of this event.

There are millions of technology users who access social media everyday, this makes social media one of the best avenues to share your story and spread awareness. The new RAREToolkit: How to Promote Your Rare Disease Story Through Social Media will provide hands on tips and how-to's, from how to use some of the most popular platforms available to, how to effectively share your story through them. Check it out here.

Social Media Awareness - Patients, advocates, and industry alike can grow social awareness by sharing photos, information and events with Global Genes' FacebookTwitter, and Instagram. Supporters can tag their photos or posts with hashtags #WearThatYouCare, #WRDD2016, and #CareAboutRare to help draw attention to their content. Additionally, supporters can visit www.globalgenes.org/CareAboutRare and upload their photo into photo frames to use as social media profile images to further help spread awareness.


NORDEurodis

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner


A EURORDIS and NORD Member Organization

Sunday, September 29, 2013

USAJobs - Federal Government Official Job Site

USAJOBS - The Federal Government’s Official Jobs Site
www.usajobs.gov
This is a United States Office of Personnel Management website. USAJOBS is the Federal Government’s ...

Employment Resources

Unemployment is one of the most profound issues facing the disability community. NOD is committed to increasing the employment rate of people with disabilities. To help job seekers with disabilities, NOD offers resources specifically addressing employment needs.

Resources and Information

America’s Service Locator
America’s Service Locator connects individuals to employment and training opportunities available at local One-Stop Career Centers. The Website provides contact information for a range of local work-related services, including unemployment benefits, career development, and educational opportunities.

Visit America’s Service Locator.

GettingHired.com
GettingHired.com is a private sector initiative helping to close the employment participation gap for people with disabilities while helping employers meet the challenge of finding qualified workers. It is the largest national employment and networking portal connecting talented job seekers who happen to have disabilities, employers and jobs, agencies providing services to the community of people with disabilities, college and university disability and career services departments, veterans groups and disability advocacy groups.

Visit GettingHired.com.

Hire Heroes USA
Hire Heroes USA provides career placement assistance to returning service men and women, specializing in the career placement of those injured or with any level of disability. Hire Heroes USA has a wide range of employment opportunities available nationwide, ranging from entry level to senior positions.

Visit Hire Heroes USA.

HirePotential
HirePotential specializes in employing people with disabilities, mature workers, and veterans, working with businesses that actively support diversity. You can send your resume using their online tool, or view current job openings on their database.

View the HirePotential Employment Resources.

Job Accommodation Network
The Job Accommodation Network (JAN) provides free consulting services for individuals with physical or intellectual limitations that affect employment. Services include one-on-one consultation about job accommodation ideas, requesting and negotiating accommodations, and rights under the Americans with Disabilities Act (ADA) and related laws.

Visit the Job Accommodation Network.

National Business and Disability Council
The National Business and Disability Council (NBDC) offers resources for career-seekers with disabilities, including links to local resources and webcasts on resume writing and disclosure. You can post your resume in their national resume database or search through job listings.

Visit the National Business and Disability Council.

Office of Disability Employment Policy
The Office of Disability Employment Policy (ODEP) provides national leadership on disability employment policy by developing and influencing the use of evidence-based disability employment policies and practices, building collaborative partnerships, and delivering authoritative and credible data on employment of people with disabilities.

Visit the Office of Disability Employment Policy.

Project Vision
The Project Vision Website is part of the World Institute on Disability's Proyecto Vision, the first National Technical Assistance Center for US Latinos with disabilities. The bi-lingual site offers job listings, success stories, and resource links.

Visit Project Vision.

USA Jobs
The USA jobs website lists positions available within the US government, and individuals with disabilities can use it in conjunction with the Selective Placement Program Coordinator (SPPC) directory. The directory lists the SPPC contact, who helps to recruit, hire and accommodate people with disabilities within each government agency.

http://www.usajobs.gov/
http://apps.opm.gov/sppc_directory/

Search for Jobs

There are a number of national websites that aggregate job listings, allowing users to search for jobs posted around the country. Two examples are Indeed.com and SimplyHired.com.

Cheryl Fields, MBA, Ph.D., (ABD)/(c)
Community Outreach Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)





A EURORDIS and NORD Member Organization 

Saturday, September 14, 2013

MEBO talks to US President on NORD Conference Call

As an Organization Member of the National Organization for Rare Disorders (NORD), MEBO was invited to a

Conference call with the President of the United States, Barack Obama, and the Health and Human Services Secretary Kathleen Sebelius

on Monday, September 16, at 1:40pm EDT to discuss the October launch of the Health Insurance Marketplace. Of course, as members of NORD, our focus will be on how this will affect Rare Disorders, including TMAU and other body and breath odor conditions. Our very own MEBO Community Outreach Director, Cheryl Fields, MBA, PhD (ABD), Human Resources Consultant, was granted a reserved space to join the call to represent our cause.

Our entire international community is most grateful to Cheryl for stepping up to represent us. We look forward to hearing her account of this experience, which will be posted in this blog. The MEBO goal to bring our cause to our political leaders has reached the highest levels in the US government, and I hope that good relationships can be established with this opportunity for future communications. We have reached great heights as an organized community with this opportunity, and we thank NORD for making it happen for us.

Cheryl, remember that you have our whole community praying and thinking of you on Monday afternoon, in camaraderie and support. All the best to you!

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)








A EURORDIS and NORD Member Organization