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Showing posts with label Ellie. Show all posts
Showing posts with label Ellie. Show all posts

Thursday, September 11, 2014

UK most popular mid-morning TV show looking for TMAU volunteer

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<b>UK TV Channel : ITV</b>
<b>Programme : This Morning</b>
<b>Looking for TMAU diagnosed person to appear on show</b>
<b>This would be the 4th TMAU person on the show</b>

UK ITV show 'This Morning' is looking for a TMAU diagnosed person to appear on the show. They have contacted the tmau.org.uk website to ask for a volunteer. This would be the 4th TMAU person to appear on the show, following on from Claire, Karen and Ellie. Raising awareness of metabolic malodor is a vital need for the metabolic malodor community, as both the public and &nbsp;researchers are still mostly unaware of the concept.

The email to the tmau.org.uk owner said the following :

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We are looking for a case study of someone who has been diagnosed with trimethylaminuria and can talk on live TV about how it affects their life. We arrange all travel and can pay a fee. It will be for a Tuesday show over the next few weeks. It would be brilliant if you could help. Thanks!""

adrian.butler@itv.com

Adrian Butler | Newsdesk journalist, This Morning | ITV plc 6th Floor/Studio 8 This
Morning London Television Centre Upper Ground | London | SE1 9LT |
Tel: 020 715 74153

<a href="http://www.tmau.org.uk/chat/viewtopic.php?f=15&amp;t=1092" target="_blank">Link to post on tmau.org.uk forum</a></div>


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Monday, April 14, 2014

Ellie Raising Awareness about TMAU



MESSAGE FROM KAREN:

Hi all,

In case you didn't already hear about Ellie's busy week this week raising awareness, here is the info:


MailOnline, 6 APR 2014
Topic with links to Daily Mail / Mirror articles and Radio interview

Ellie will also be on:
tomorrow This Morning 11.30 (Tuesday 8th) and Anne Diamond BBC Radio Berkshire 12.05.
Our thoughts and our thanks go with her!

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


A EURORDIS and NORD Member Organization 

Friday, April 11, 2014

Ellie is interviewed about her TMAU on UK national ITV show This Morning

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Ellie is interviewed about her trimethylaminuria (TMAU) on UK national ITV show 'This Morning', 8 April 2014. This is the same show Karen and Claire appeared on. It is one of the most popular mid-morning UK TV shows.

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<b>A</b> <a href="http://www.eurordis.org/" target="new"><b>EURORDIS</b></a> <b>and</b> <a href="http://www.rarediseases.org/patient-orgs/current" target="new"><b>NORD</b></a> <b>Member Organization</b><a href="http://www.rarediseases.org/patient-orgs/current" style="font-style: normal;" target="blank"> </a> <a href="http://www.rareconnect.org/en/community/trimethylaminuria" style="font-style: normal;" target="blank"><img border="0" height="97" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4KKvoLgJHgM36WkRIKTxXA9Pd6GO51cr1dIQS1LZp5zGV5tHk-xCYgQ9XeKw-CmbCd_qt5-wvtBDt28anF6BwSIuVEWwzmA_mpYkAEKf2naQqThW6lN3uS6Dsb_BVr_5WervkQwyhpPs/s320/mebonordeurordis.jpg" style="cursor: hand; cursor: pointer; float: center; height: 84px; margin: 0 10px 10px 0; width: 320px;" /></a></div>
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Sunday, April 6, 2014

Volunteer Raising Awareness

http://www.mirror.co.uk/news/weird-news/ive-suffered-14-years-smelling-3380410


MESSAGE FROM KAREN:

Hi all,

In case you didn't already hear about Ellie's busy week this week raising awareness, here is the info:


MailOnline, 6 APR 2014
Topic with links to Daily Mail / Mirror articles and Radio interview

Ellie will also be on:
tomorrow This Morning 11.30 (Tuesday 8th) and Anne Diamond BBC Radio Berkshire 12.05.
Our thoughts and our thanks go with her!

Karen
Public Relations Director
Raising Awareness Activist


A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil Blog (em português)




MESSAGE FROM KAREN:

Hi all

Ellie has not only done the above article for The Mirror but she is also on BBC Radio 5 live tomorrow at 8.40. Tune in if you can!

MailOnline, 6 APR 2014
Ellie was also on the front page of the Daily MailOnline, April 6, 2014.

Great job, Ellie. Brilliant work on our behalf!!

Best wishes
Karen




A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil Blog (em português)

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