MEBO Annual Conference, Savannah 2018

Excerpts from Prof Sekine's PowerPoint Presentation, MEBO Annual Conference, Savannah, Ga.

Ellie Raising Awareness about TMAU

Join Ellie in Raising Awareness -
Anyone, anywhere in the world
SIGN THE BORC PETITION
using only username and email address

http://www.meboblog.com/2014/04/borc-public-awareness-campaign-petition.html

MESSAGE FROM KAREN:

Hi all,

In case you didn't already hear about Ellie's busy week this week raising awareness, here is the info:

http://www.tmau.org.uk/chat/viewtopic.php?f=15&t=995

MailOnline, 6 APR 2014

Topic with links to Daily Mail / Mirror articles and Radio interview

Ellie will also be on:
tomorrow This Morning 11.30 (Tuesday 8th) and Anne Diamond BBC Radio Berkshire 12.05.
Our thoughts and our thanks go with her!

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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A EURORDIS and NORD Member Organization 

Volunteer Raising Awareness

http://www.mirror.co.uk/news/weird-news/ive-suffered-14-years-smelling-3380410

Join Ellie in Raising Awareness -
Anyone, anywhere in the world
SIGN THE BORC PETITION
using only username and email address

http://www.meboblog.com/2014/04/borc-public-awareness-campaign-petition.html

MESSAGE FROM KAREN:

Hi all,

In case you didn't already hear about Ellie's busy week this week raising awareness, here is the info:

http://www.tmau.org.uk/chat/viewtopic.php?f=15&t=995

MailOnline, 6 APR 2014

Topic with links to Daily Mail / Mirror articles and Radio interview

Ellie will also be on:
tomorrow This Morning 11.30 (Tuesday 8th) and Anne Diamond BBC Radio Berkshire 12.05.
Our thoughts and our thanks go with her!

Karen
Public Relations Director
Raising Awareness Activist

A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil Blog (em português)




MESSAGE FROM KAREN:

Hi all

Ellie has not only done the above article for The Mirror but she is also on BBC Radio 5 live tomorrow at 8.40. Tune in if you can!

MailOnline, 6 APR 2014

Ellie was also on the front page of the Daily MailOnline, April 6, 2014.

Great job, Ellie. Brilliant work on our behalf!!

Best wishes
Karen

---

---

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil Blog (em português)

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Raising Awareness interview UK's Full House Magazine

On April 4, 2013, a brave sufferer, Tracy, told her story to UK's Full House magazine. I know it is difficult to put oneself out in the public eye to talk about this condition. I would like to thank Tracy for her courage to bravely tell the world what this is all about in hopes that with knowledge, people will treat sufferers with greater understanding and sensitivity. We hope that with raising awareness, life will becomes more tolerable for all sufferers.

Thank you Tracy.

María


María de la Torre
Founder and Executive Director

  A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

---

A EURORDIS and NORD Member Organization 

Lady with TMAU on UK morning TV programme

<object height="385" width="100%"><param name="movie" value="http://www.youtube.com/v/7IPV72B4-3c&amp;hl=en_GB&amp;fs=1?color1=0xe1600f&amp;color2=0xfebd01"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/7IPV72B4-3c&amp;hl=en_GB&amp;fs=1?color1=0xe1600f&amp;color2=0xfebd01" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="100%" height="385"></embed></object>  Claire appeared on the popular mid-morning UK TV lifestyle programme 'This Morning' on Tuesday 20th July, to talk about her trimethylaminuria. The subject was handled very sensitively and will lead to further awareness of TMAU. Claire made sure they understood that 'fish body odor' was not a correct description in her case, and used the terms 'pooey' and 'garbage' to describe her smells, which is a brave admission and one many of us can more relate to. Thank you to Claire for courageously appearing on TV. Amazingly, This is the 3rd person to talk about their TMAU on UK TV this year. We all benefit from their bravery and the taboo about the subject is becoming weaker, as well as hopefully raising awareness amongst the medical system. The influential effect of appearing in the media cannot be underestimated. Thanks to you all.  The video is on the 'This Morning' website but not viewable to those outside the UK, so a copy has been put on youtube.  Claire regularly posts on the <a href="http://www.tmau.org.uk/">tmau.org.uk</a> forum, which again played a pivotal role in making an appearance possible. Our thanks again to the site owner, Big Vern, for all he is doing for the community.