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Showing posts with label community websites/blogs. Show all posts
Showing posts with label community websites/blogs. Show all posts

Friday, October 4, 2013

Webinar #7: "Seeking Employment" by Cheryl Fields

7th WEBINAR

"SEEKING EMPLOYMENT"

by
Cheryl L. Fields, MBA, Ph.D. (ABD)
Human Resources Consultant
MEBO US Community Outreach Director

HOSTED BY RARE CONNECT


You are most cordially invited to attend the 7th Webinar hosted by RareConnect on Sunday, October 20th. Our dear friend and MEBO Community Outreach Director, Cheryl Fields, also known in our community as Dr. StillStanding, gave a very interesting and thought-provoking presentation on "Seeking Employment" at the MEBO Annual Meetup and Conference held at Miami Beach on June 23, 2012. She touched upon the dos and don'ts of job seeking, from writing a résumé 21st century style, to the job interview experience, to on-the-job and work environment issues for sufferers of body and breath odor conditions. Her presentation aroused a very lively group discussion that captivated the full attention of everyone present. Due to popular demand, the presentation went beyond the allotted programmed time, as more and more questions were raised.

We are most grateful to Cheryl for consenting to give us another presentation on this topic on the 7th Webinar hosted by RareConnect on Sunday, October 20, 2013.


DATE: October 20, 2013

TIME: 1700h/5:00pm UTC (To determine your local time, click here, http://www.timeanddate.com/worldclock/)

HOW TO JOIN THE WEBINAR:
  1. To enter the webinar meeting room, click here, https://eurordis.adobeconnect.com/
  2. Register as Guest (invited) with your name or username. No password is necessary.
  3. Connect your headphones.

See previous WEBINARS
I look forward to seeing everyone at the webinar.

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)






A EURORDIS and NORD Member Organization 

Monday, July 23, 2012

Trimethylaminuria community group on RareConnect website

WEBSITE FOR RARE DISORDER
PATIENT COMMUNITIES
TMAU pages on RareConnect website
The RareConnect website is a partnership of NORD, a U.S. National Organization for Rare Disorders, and EURORDIS, a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases. The purpose of this website is to connect rare disease patients globally. The website itself is a place where sufferers, sufferer organizations, and those related can join to communicate, as well as being a one-stop place to learn about the disorders.

We are happy to say that trimethylaminuria (TMAU) is one of the disorders that has a place in this site for our international community. Trimethylaminuria (TMAU) pages on Rare Connect website.

All sufferers and sufferer organizations are welcome to register and become a member of this site that offers a wide web of connections with rare disease sufferers throughout the world, language services, news on community services, political connections and endeavors, special projects, and much more. You may choose whichever language you are most comfortable with, such as German, English, Spanish, French, or Italian to register. Please feel free to write your personal testimonial if you like, under the "Call for stories" article written by the RareConnect team. Stories can be submitted anonymously to webmaster@rareconnect.org.

Please note that this is not a MEBO Research site, though MEBO is a NORD Organization Member and a RareConnect member, and all the currently registered patient groups look forward to uniting with the rest of our international community's sufferer organizations, forums, and individuals wishing to get together under the hospice of these two great organizations through RareConnect. So please do register individually or under your organization's name.

THANKS TO ALL WHO PARTICIPATE
from around the world!
María

María de la Torre
Founder and Executive Director
A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization